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Ten-year-old Alyssa Davies from Preston loves art, Harry Potter, riding her bike with friends and playing with her eight-year-old sister Lauren. Here, she and her mum, Angela, talk about her cancer diagnosis and coming to London for a day to visit a Cancer Research UK lab.

On March 17th 2014, Alyssa was diagnosed with acute lymphoblastic leukaemia (ALL).

“It was such a shock,” remembers Angela. “Alyssa had been feeling unwell and tired for a while, but we didn’t think it was anything serious. At one point we thought she had the mumps but that was it.

“When I heard the news, I remember thinking ‘we’re going to lose her’”.

The pros and cons of treatment

Alyssa was transferred to the Royal Manchester Children’s Hospital for treatment. Over the next six months, she had five cycles of chemotherapy, a lumbar puncture and was given steroids.

Alyssa and her family.

According to Angela, the steroid were the ‘worst part of treatment’ because they made Alyssa really moody.

Alyssa remembers them not being particularly nice as well.

“They made me go a bit loopy!” she recalls. “They tasted horrible, and they made me grumpy and hungry.”

So hungry that Angela remembers one day, Alyssa ate spaghetti bolognaise for breakfast. And another day she ate eight Yorkshire puddings.

“Some foods I liked before treatment tasted horrible during it so I didn’t eat those.”

As hard as it was, the family knew that Alyssa had to have these treatments – side effects and all.

As part of her treatment Alyssa joined the UKALL 2011 clinical trial which is being carried out at different hospitals across the UK.

“I’m pleased she got to join the trial,’ says Angela. ‘And I’m especially pleased she didn’t have to have steroids as part of it.”

The good news is that these treatments worked. Today, Alyssa is doing well. She’s back at school, having fun with her friends and is thinking about the future.

In 2015, she was given a Cancer Research UK Star Award to celebrate the strength she showed when she was diagnosed with cancer. As part of this, Alyssa joined other Star Award winners at Downing Street, where they also launched the Cancer Research UK Kids & Teens campaign.

“It was such a fun day,” remembers Alyssa. “I got to meet Donna Air, Sara Cox and Rochelle Humes from the Saturdays! My sister Lauren got to come to the party too – it was so much fun.”

A grand day out

People affected by cancer drive everything Cancer Research UK does. By sharing their experiences with us, they give vital insights that help us develop our work and ensure we continue to make progress and beat cancer sooner.

That’s why in February, we invited Alyssa and her family to London to show them around one of our labs, and to hear what they think we need to do to improve treatment and survival for children and young people affected by cancer.

Alyssa and Lauren’s parents surprised them with tickets to Matilda the musical.

While there, Alyssa met Dr Áine McCarthy from the Cancer Research UK science communications team to talk about the work we’re doing in this area right now.

“We came down to London on the train the day before we went to visit the lab”, explains Alyssa.

“Lauren and I were so excited – we hadn’t been to London in ages.”

What the girls didn’t know was that the fun was just beginning. Their parents had bought tickets for the whole family to see Matilda the musical.

“When we told the girls they were over the moon,” explains Angela. “They were just so excited.”

The next morning, after what Alyssa describes as a ‘brilliant night’, it was time to meet Áine and visit the lab.

They went to one of the teaching labs at Barts Cancer Institute, the Cancer Research UK centre where Áine did her PhD, and had a look at some of the equipment scientists use to study cancer.

According to Alyssa, there were ‘some really cool things’ in the lab.

“Me and Lauren had loads of fun looking at all the different stuff in there.

“My favourite thing was the microscope – we used it to look at some cells up close. It made them look huge!”

After having some fun in the lab, it was time for Alyssa to chat to Áine.

“One of the things I really wanted to know was what’s happening to make treatments better and less horrible,” says Alyssa.

“I didn’t like any of my treatment but some parts were worse than others – sometimes it tasted really horrible. When I talked to Áine she told me that there are scientists are trying to change things so that treatment isn’t as bad anymore.”

Áine also talked to Alyssa about the work of Professor Pam Kearns, who is Director of the Cancer Research UK Clinical Trials Unit at the University of Birmingham. Along with her team, Kearns is working to understand why sometimes leukaemia treatment works, and sometimes it doesn’t. If they can figure this out, it could help to make sure each patient gets the right treatment for them, and help scientists develop new treatments too.

Looking to the future

Alyssa’s teddy Carys loved visiting the lab too.

Alyssa and her family believe this, along with all of the other work Cancer Research UK is doing to improve survival for children and young people with cancer is really important.

When Áine asked Alyssa if she thinks the work Cancer Research UK supports is important, her response was, “Yes, because then you can help other people differently and faster.”

In the future, Alyssa herself could be involved in carrying out some of this research.

“When I grow up I want to be a nurse so that I can help other children. I hope that by then, things will be different for children with cancer. And that they won’t have treatment that tastes so yucky.”

Comments

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paula addison-fletcher September 29, 2017

i think alyssa,s story is fantastic it gives other parents joy of knowing that treatments are improving,and success rate of survival is fantastic , i think she is wonderful,brave, she came out shining good luck for the future xxx

Aine McCarthy September 22, 2017

Hi Pam,
Thanks for taking part in Race for Life and raising money for us – we really appreciate it. If you visit our website – https://raceforlife.cancerresearchuk.org/after-your-event/return-your-sponsorship – you can find out about the different ways you can return the money that you’ve raised for us. Or, you can contact our Race for Life team by emailing rfl@cruk-raceforlife.co.uk or by phoning 0300 123 4452 (9am – 5pm Monday – Friday).

Best wishes,

Áine, Cancer Research UK

pamelaa September 21, 2017

hi i need to pay my race for life money in 25pounds i have nothad a email to pay it yet can you send me one please

Rita Anand September 18, 2017

The collaborative work of scientists, fundraisers, doctors & nurses has given patients the hope to not fear Cancer.

Margaret Maysmor September 16, 2017

How inspiring to read of Alyssa’s story. I hope she continues to remain well and achieve her potential in later life. So pleased to hear good news in this increasingly disturbed world.

Jeff Ellmer September 14, 2017

Like so many youngsters, I think Alyssa is such an inspiration ! It is so heartbreaking to see people who are already suffering a terrible illness, suffer even more because of the awful side effect of Chemo etc ! I have lost many family and friends to Cancer, but I am also I still having to watch even more suffering the unbearable side effects !! We must all do more to help, this includes becoming more involved in understanding and supporting those who are undergoing treatment, plus those who have just been diagnosed with Cancer !! It’s good to fundraise, but it’s more important to be there with them giving moral support !! Lets all fight Cancer together !!!

David. September 14, 2017

So happy for Alyssa and her family, and glad to know that Cancer Research has improved survival rates in children and also other cancer sufferers.

Maureen Beason September 14, 2017

God bless Alyssa xxx

Norman September 13, 2017

It’s good to learn about these experiences

Kay C September 13, 2017

An inspiring story that resonates with our experience. Our son, too, was diagnosed with the same leukaemia in 2007 when he was 14. He found the treatment very difficult, especially the steroids. Ten years on he is well and has just graduated from university with a 2:1! We are very grateful to Cancer Research and other organisations for the advances made in treatment over the years and hope this continues!

Peter Jones September 13, 2017

Deeply heart warming! I’m always delighted – inspired even – to learn there is some good happening in a world I’m finding increasingly difficult to understand. God bless little Alyssa:-)

chris September 13, 2017

Inspiring for all people who may have children who have chronic health problems like cancer. A very brave and inspirational young woman. I hope she does go on to be a nurse, doctor, scientist, or whatever she deides to do in her adulthood. A piece of good news in a world seemingly obsessed with the badness of humanity

K.Russell September 13, 2017

Well done Royal Manchester,and a very brave girl. Love from our
family to you and your family.

Donna September 13, 2017

Good to know efforts being made to make treatments more tolerable for children